Overall

I’m a post-bac student at CSUF and currently in a fluency class. I’m curious to know what PWS feel and think about SLPs. What has been your overall experience, if you’ve had speech therapy before or are currently seeing an SLP now? Also, what do you feel is missing or should be improved in this field from your personal experience? 

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Overall — 3 Comments

  1. Hi-

    This is a really great question! I think it may be more geared toward our ‘Talk to a PWS’ panel – so please be sure to post it there. This way people who stutter can share their thoughts and feedback on your question.

    Best,
    ~Jaime

  2. Hi

    Techniques that I remember from my youth were not very helpful, as they only focused on breathing. F ex I was asked to say the days of the week and repeat as many times as possible in one breath. Well, I played the saxophone 😉 With another one we drank a lot of tea where she was listening to my stories. Nice, but when I felt I wasn’t going anywhere after a year, I wanted to stop. And she replied by throwing it all back in my face. That everyone was right, it was my fault, I was a quitter, etc. Another one let me talk and read with a hand on my tummy. And everytime I stuttered, she interrupted me, which had me focus on what I was doing “wrong” even more. I tried hypnosis, but couldn’t get in the hypnosis state. I even tried a pyrit stone in my pocket. A healer got rid of my shame.

    But things got better. Today I have learned techniques that help me stutter less.

    The techniques that helped me are
    1. selfesteem. The better I feel about myself, the better I speak. Fluency is one thing, but if I don’t love and accept myself, I’m building a tower in the swamp, and risk to fall so hard, it can make me silent, or be afraid of every word, as fluency might become the only “right” thing. NLP and Mindfullness have helped me to no longer feel bad about myself for stuttering, and to move on and stop altering.
    2. public speaking. Good speakers use body language, voice, pausing, etc. By studying speakers I like to watch and listen to, and learning from them, my speech has increased. It is, and will always be a roller coaster, but I can use the techniques when I feel I need to use them. And the acceptance to feel ok when I decide to not use techniques and just stutter on. I also feel good by relaxation techniques. And of course peers who cheer for me on good days and who pull me up when I’m not feeling good. My “Stamily” has been crucial to get me back on my feet and to stand with me on my journey.

    The hard part, but also the part that makes your job so exiting and interesting is that we PWS are all different, and that we come to your for different reaons. Some want fluency, some want a toolbox to simply get out of a block or get a slightly smoother speech, others might want to get help to educate a family member to get him/her off their back. 😉 So start by creating a relation with your client by listening what s/he wants, have an open mind and think out of the box, and offer a mix of tools to give it a try and see what fits this very client. And don’t hesitate to ask. As you’re the expert on treatment, but your client is the expert on his/her stutter, so together you can make the perfect match. 🙂

    Happy ISAD and keep them talking

    Anita

  3. Hi,

    You asked, “what do you feel is missing or should be improved in this field from your personal experience?”

    I think a lot of graduate programs for SLPs only one have one course about stuttering and some have none. I think that needs to be changes.

    I also think it should be required that students and new SLPs should meet people who stutter, to understand us and learn that we are more than our stuttering, which some therapists are trained to believe that stuttering needs to be fixed.

    Some SLPs walk into a therapeutic relationship with a person who stutters never having met a person who stutters before. It’s not enough to read about it in text or hear lectures from professors who may not stutter.

    MEET people who stutter. I believe it should be a requirement that future and new SLPs should attend stuttering support groups, either in person or online. Listen and participate, not just sit in the back and take notes. Imagine how that would make stutterers in the group feel? Like you were researching us instead of talking with us.

    Pam